Wednesday, December 27, 2017

Why?

There are so many days I ask WHY? Why am I in this life? Why am I trying to blog about it? Why do we have to live like this? Why can't he get it? Why can't he act his age?Why can't everyone else understand what we go through? Why can't we help him more? Why can't I win the lotto? It is the ever present present why me, which for the most part I really don't go there. Because WHY? What is the point? I already got the why us part...clearly. The 100 people who have actually told me "wow, I could never do, handle, live with that" pretty much make it clear. And really, my family is amazing, we are chill, laid back and pretty much roll on with the added strife of a special needs child. Most days. Erma Bombeck has a pretty spectacular essay about the Why and WHO gets these amazing kids...I would like to tip my hat to my favorite mom of the seventies other than my own and say, you got it. You get it and see how wonderful we parents are in spite of our sighs, cries, and whys.
The other day in a parking lot I witnessed a man who just totally didn't get it and made it worse. A young mom leading her incessant tantruming child out of Walmart, handling the child in a forceful but consistent way. Borderline of what is acceptable mom behavior. I looked and knew by the repetitive tone of the child, the child's complete lack of respect, the mom's calm demeanor in spite of being firm, the sheer exhaustion her face and the been there done this everyday expression of what was going on. I knew I couldn't help her. I could say, hang in there, you go girl, but really in that moment, she doesn't want that, she wants her kid done and in the car. So, the obnoxious 40 something man yelling at her and causing a scene about the way she is handling her child was completely not helping. He was threatening to call the police and have her arrested. Really? The mom handled it with more grace than I usually do. I ignore and seethe later. She fired off a comment while walking purposefully to her car child in tow, "Have you ever heard of autism?" I thought yes in my head, and I have lived your walk, and have just had to do a similar walk, even though my child is now ten years older. I have spent 10 more years than you living this. The good news, we are all still walking. The bad news, it has been such a hard walk. I know that man has heard of autism. I also know that guy has no idea how autism presents itself everyday all day to the parents of these 1 in 63 kids.

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